Briefs & Reports

Care Coordination for California’s Children and Youth with Special Health Care Needs: Building Blocks from other States

Lucile Packard Foundation for Children's Health

For the more than one million children and youth with special health care needs (CYSHCN) in California, care coordination can be critical for linking them and their families to needed medical, developmental, behavioral, educational, and social services, and for providing logistical assistance and emotional support. A review of care coordination programs around the country revealed that while there is no single accepted model for care coordination, the essential building blocks are similar across programs: eligibility guidelines and determination, services and standards, payment/reimbursement mechanisms, financing, and oversight/monitoring. These represent decision points for California policymakers, officials, and other stakeholders as they consider ways to improve care coordination for CYSHCN. This report presents options for each building block based on seven care coordination programs in six other states, considerations given California’s unique environment, and lessons from other programs about key “ingredients” for an effective, sustainable care coordination system.