On Rare Disease Day, HMA releases new report analyzing federal spending on Orphan Drugs
February 28, 2025
Rare Disease Day is observed globally each year on February 28 to raise awareness, access, and diagnosis to therapies for people with rare diseases. Today HMA releases a report titled Analyzing the Impact of Policies to Exclude Certain Orphan Drugs from the Drug Price Negotiation Program of the Inflation Reduction Act, that examines how many orphan drugs the ORPHAN Cures Act might affect and the percentage of Medicare Part B and Part D spending that is attributable to these drugs. Using that information, we estimated how the legislation would affect federal spending, applying the same assumptions and methodology that the Congressional Budget Office (CBO) uses in a 10-year budget score.
